Deafness and Hearing Disorders
Organizations/Information
Directory of Organizations
National Institute on Deafness and Other Communication Disorders
http://www.nidcd.nih.gov/health/directory/index.asp
National Institute on Deafness and Other Communication Disorders
Phone: 800-241-1044
TTY: 800-241-1055
Email: nidcdinfo@nidcd.nih.gov
http://www.nidcd.nih.gov/index.asp
Publications
Deaf or Hard-of-Hearing: Tips for Working with Your Doctor
American Academy of Family Physicians, 2011
http://familydoctor.org/x1875.xml
Return to Specific Diseases and Conditions
Diabetes
Organizations/Information
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
Phone: 800-DIABETES (800-342-2383)
http://www.diabetes.org
Directory of Diabetes Organizations
National Diabetes Information Clearinghouse
http://diabetes.niddk.nih.gov/resources/organizations.htm
National Diabetes Information Clearinghouse
1 Information Way
Bethesda, MD 20892-3560
Phone: 800-860-8747
http://diabetes.niddk.nih.gov
Return to Specific Diseases and Conditions
Digestive Diseases
Organizations/Information
Directory of Digestive Diseases Organizations for Patients
National Digestive Diseases Information Clearinghouse
http://digestive.niddk.nih.gov/resources/patient.htm
National Digestive Diseases Information Clearinghouse
2 Information Way
Bethesda, MD 20892-3570
Phone: 800-891-5389
http://digestive.niddk.nih.gov/about/contact.htm
Return to Specific Diseases and Conditions
Eye Diseases and Disorders
Organizations/Information
National Eye Institute
Information Office
31 Center Drive MSC 2510
Bethesda, MD 20892-2510
Phone: 301-496-5248
http://www.nei.nih.gov/health
Eye Health Organizations Database
National Eye Institute
http://www.nei.nih.gov/health/resourceSearch.asp
Return to Specific Diseases and Conditions
Fibromyalgia
Organizations/Information
National Fibromyalgia Association
2200 N. Glassell Street, Suite A
Orange, CA 92865
Phone: 714-921-0150
http://www.fmaware.org
National Institute of Arthritis and Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)
http://www.niams.nih.gov
Publications
Questions and Answers About Fibromyalgia
National Institute of Arthritis and Musculoskeletal and Skin Disease, 2004
http://www.niams.nih.gov/Health_Info/Fibromyalgia/default.asp
Return to Specific Diseases and Conditions
Heart Disease
Organizations/Information
American Heart Association
National Center
7272 Greenville Avenue
Dallas, TX 75231
Phone: 800-AHA-USA1 (800-242-8721)
http://www.heart.org/HEARTORG/
Heart and Vascular Diseases
National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/public/heart/index.htm
Heart Health & Stroke
National Women's Health Information Center
http://www.womenshealth.gov/heart-stroke/
Heart Health Online
Food and Drug Administration
http://www.fda.gov/hearthealth
National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
http://www.nhlbi.nih.gov/health/index.htm
Publications
How to Talk to Your Health Care Provider about Heart Disease and Heart Health
National Women's Health Information Center, 2003
http://www.womenshealth.gov/tools/howtotalk.cfm
Communicating with Professionals
American Heart Association, 2011
http://www.heart.org/HEARTORG/conditions/CardiacRehab/Communicating-with-Professionals_UCM_307052_Article.jsp
Return to Specific Diseases and Conditions
High Blood Pressure
Organizations/Information
National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
http://www.nhlbi.nih.gov/health/index.htm
Publications
Your Guide to Lowering High Blood Pressure
National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/hbp/index.html
Return to Specific Diseases and Conditions
HIV/AIDS
Organizations/Information
AIDSinfo
U.S. Department of Health and Human Services
http://www.aidsinfo.nih.gov
Return to Specific Diseases and Conditions
Immunodeficiency Disorders
Publications
Living with Primary Immunodeficiencies, Section 1: What Happens After the Diagnosis
International Patient Organisation for Patients with Primary Immunodeficiencies, 2004
http://www.ipopi.org/publications/living-with-pid/01.html
Return to Specific Diseases and Conditions
Infectious Diseases
Organizations/Publications
Publications
National Institute of Allergy and Infectious Diseases, National Institutes of Health
http://www3.niaid.nih.gov/PubsOrderForm/default.asp
Return to Specific Diseases and Conditions
Kidney Diseases
Organizations/Information
Directory of Kidney and Urologic Diseases Organizations
National Kidney and Urologic Diseases Information Clearinghouse
http://kidney.niddk.nih.gov/resources/organizations.htm
National Kidney and Urologic Diseases Information Clearinghouse
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-891-5390
http://kidney.niddk.nih.gov
Return to Specific Diseases and Conditions
Lung Diseases
Organizations/Information
Lung Diseases Information
National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/public/lung/index.htm
National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
http://www.nhlbi.nih.gov/health/index.htm
Return to Specific Diseases and Conditions
Mental Health
Organizations/Information
Health Information
National Institute of Mental Health
http://www.nimh.nih.gov/health/index.shtml
Mental Health America!
2001 Beauregard Street, 12th Floor
Alexandria, VA 22311
Phone: 800-969-NMHA (800-969-6642)
http://www.mentalhealthamerica.org
Publications
Dialogue for Recovery: "After a Diagnosis"
Mental Health America!
http://www.mentalhealthamerica.net/go/dialogue-for-recovery
Support
Getting Help: Locate Services
National Institute of Mental Health
http://www.nimh.nih.gov/health/topics/getting-help-locate-services/index.shtml
Return to Specific Diseases and Conditions
Multiple Sclerosis
Organizations/Information
National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
Phone: 800-Fight-MS (800-344-4867)
http://www.nmss.org
Publications
Living with MS: For People Newly Diagnosed
National Multiple Sclerosis Society, 2004
http://nationalmssociety.org/about-multiple-sclerosis/newly-diagnosed/index.aspx
Return to Specific Diseases and Conditions
Muscular Dystrophy
Organizations/Information
Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
Phone: 800-572-1717
http://www.mdausa.org
National Institute of Arthritis and Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)
http://www.niams.nih.gov
NINDS Muscular Dystrophy Information Page
National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/disorders/md/md.htm
Return to Specific Diseases and Conditions
Neurologic Disorders
Organizations/Information
National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/disorders/disorder_index.htm
Return to Specific Diseases and Conditions
Obesity
Organizations/Information
Aim for a Healthy Weight
National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/public/heart/obesity/lose_wt/patmats.htm
BMI—Body Mass Index: Introduction
Centers for Disease Control and Prevention
http://www.cdc.gov/nccdphp/dnpa/bmi/index.htm
National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
http://www.nhlbi.nih.gov/health/index.htm
Weight-control Information Network (WIN)
National Institute of Diabetes and Digestive and Kidney Diseases
http://win.niddk.nih.gov/publications/index.htm
Support
Overeaters Anonymous
World Service Office
P.O. Box 44020
Rio Rancho, NM 87174-4020
Phone: 505-891-2664
Email: info@oa.org
http://www.overeatersanonymous.org
Return to Specific Diseases and Conditions
Parkinson's Disease
Organizations/Information
National Parkinson Foundation, Inc.
1501 NW 9th Avenue
Bob Hope Road
Miami, FL 33136-1494
Phone: 800-327-4545
http://www.parkinson.org
Publications
Living Well
National Parkinson Foundation, Inc.
http://www.parkinson.org/Parkinson-s-Disease/Living-Well
What do the Newly Diagnosed Need to Know (video)
National Parkinson Foundation, Inc.
http://www.parkinson.org/Video-Library/What-do-the-Newly-Diagnosed-Need-to-Know-
Return to Specific Diseases and Conditions
Rare Diseases and Disorders
Organizations/Information
Office of Rare Diseases Research
National Institutes of Health
http://rarediseases.info.nih.gov/Default.aspx
National Organization for Rare Disorders
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
Phone: 800-999-6673 (voicemail only)
http://www.rarediseases.org
Toll-Free Numbers for Health Information
National Health Information Center
http://www.health.gov/nhic/pubs/2005tollfreenumbers/2005toll freenumbers4.htm#RARE
Return to Specific Diseases and Conditions
Skin Diseases
Organizations/Information
National Institute of Arthritis and Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484 or 877-22-NIAMS (877-226-4267) (toll-free)
http://www.niams.nih.gov/Health_Info/defauslt.asp
Return to Specific Diseases and Conditions
Sleep Disorders
Organizations/Information
National Heart, Lung, and Blood Institute
NHLBI Information Center
Attn: Web Site
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: 301-592-8573
http://www.nhlbi.nih.gov/health/index.htm
Sleep Disorders Information
National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/public/sleep/index.htm
Return to Specific Diseases and Conditions
Stroke
Organizations/Information
National Stroke Association
9707 E. Easter Lane
Englewood, CO 80112
Phone: 800-787-6537
http://www.stroke.org
NINDS Stroke Information Page
National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/disorders/stroke/stroke.htm
Support
Life After Stroke-Stroke Support Groups: Find a Support Group Near You
American Stroke Association (affiliated with the American Heart Association)
Phone: 888-4-STROKE (888-478-7653)
http://strokegroup.americanheart.org/strokegroup/public/zipfinder.jsp
Return to Specific Diseases and Conditions
Urologic Diseases
Organizations/Information
Directory of Kidney and Urologic Diseases Organizations
National Kidney and Urologic Diseases Information Clearinghouse
http://kidney.niddk.nih.govresources/organizations.htm
National Kidney and Urologic Diseases Information Clearinghouse
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-891-5390
http://kidney.niddk.nih.gov
Return to Specific Diseases and Conditions
Health Care Quality and Safety
Consumer Publications from AHRQ
The following publications are part of AHRQ's health care quality materials, which include Spanish translations:
20 Tips to Help Prevent Medical Errors—Practical tips and questions to ask
Go to: http://www.ahrq.gov/questions/resources/20-tips.html
AHRQ Pub. No. 00-P038
Five Steps to Safer Health Care—Shorter version of 20 Tips
Go to: http://www.ahrq.gov/patients-consumers/care-planning/errors/5steps/index.html
AHRQ Pub. No. 04-M005 (Feb. 2004)
Taking Care of Myself: A Guide for When I Leave the Hospital
Go to: http://www.ahrq.gov/questions/resources/going-home/index.html
AHRQ Pub. No. Publication 10-0059 (April 2010)
Questions Are the Answer
Go to: http://www.ahrq.gov/questionsaretheanswer/
Select from topics:
- Talking with Your Clinician.
- Getting Medical Tests.
- Planning for Surgery.
- Getting a Prescription.
- Build Your Question List.
- Resources.
- Glossary.