This study develops and tests a strategy for collecting patient-reported outcomes from people living with chronic disease, and then integrating the data into primary care workflows to support self-care and shared decision making.
What is the research about?
The collection and sharing of patient-reported outcomes (PROs)—such as symptoms of depression, anxiety, mood, sleep, and cognitive function—can give people living with chronic conditions helpful information for understanding and managing their own health. In addition, clinical teams can use PROs to support shared decision-making with patients as they jointly develop and revise care plans. The widespread availability of mobile phones allows researchers to collect PRO data when and where people experience symptoms.
In this study, the research team will develop a smart phone app for patients to share PROs in English and Chinese. Using the app, patients living with one or more chronic disease will report on their physical and mental health-related quality of life (using the PROMIS-29). The research team will integrate patients’ responses into the University of California, San Francisco’s electronic health record (EHR). To support use of the PROs within the primary care workflow, the team will use SMART-on-FHIR technology to highlight the patient’s PRO results within the EHR encounter without requiring an additional login or search by the clinician. The research team will conduct participatory design sessions, field testing, workflow prototyping, and pilot testing of the app with patients, clinicians, and clinic staff.
The research team will also conduct a single-arm prospective interventional feasibility and acceptability study with 30 patients to evaluate implementation and the effectiveness of the app on improving patient outcomes.
Results from this study are forthcoming. Publications will be posted here.
Primary Care Relevance
This study will develop and test a strategy for collecting PROs from a diverse population of patients with chronic disease, and then seamlessly integrate the data into primary care workflows to support self-care and shared decision making.
AHRQ Primary Care Priority Area
Research to improve primary care, including regarding quality, access and affordability, the workforce, care delivery models, financing, digital healthcare, person-centeredness, and health equity.
